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C9. Interpret the ethical, legal, medical, and social implications of biological data. The increasing scale and penetration of human genetic and genomic data has greatly enhanced our ability to identify disease-related loci, druggable targets, etc. and to identify potential genes for replacement with developing techniques. However, with this information also comes many ethical, legal, and social questions; suggested resolutions are often outpaced by the technological advances. As part of their scientific training, students should debate the medicinal, societal, and ethical implications of these information sets and techniques. 

  • Explain the implications, good and bad, of being able to walk into a doctor’s office and have your genome sequenced and analyzed or of being able to obtain information from direct-to-consumer testing services.
  • Be able to discuss different perspectives about who should have access to this data and how it should be protected.
  • Describe how the scientific community protects against the falsification or manipulation of large datasets.

All Categories (1-8 of 8)

  1. Yeti or not: Do they exist?

    31 Dec 2020 | Teaching Materials | Contributor(s):

    By Keith Johnson1, Adam Kleinschmit2, Jill Rulfs3, William (Bill) Morgan4

    1. Bradley University College of Liberal Arts and Sciences 2. University of Dubuque 3. Worcester Polytechnic Institute 4. The College of Wooster

    Through this 4-part bioinformatics case study, students will be led through the forensic analysis of putative Yeti artifacts based on published findings.

    https://qubeshub.org/publications/1832/?v=3

  2. BSL-4: Authorized Personnel Only

    17 Aug 2020 | Teaching Materials | Contributor(s):

    By Nicole Anthony

    Biological Sciences, Toronto District School Board

    National Center for Case Study Teaching in Science resource on the 2014 Ebola epidemic. This resource is also included in the NIBLSE Learning Resource Collection

    https://qubeshub.org/publications/795/?v=1

  3. Genome Solver: Complete Set of Lessons

    23 Oct 2019 | Teaching Materials | Contributor(s):

    By Anne Rosenwald1, Gaurav Arora2, Vinayak Mathur3

    1. Georgetown University 2. Gallaudet University 3. Cabrini University

    The Genome Solver Project began as a way to teach faculty some basic skills in bioinformatics - no coding or scripting. These Lessons also work well in the undergraduate classroom, culminating with...

    https://qubeshub.org/publications/860/?v=2

  4. Murder by HIV? Undergraduate edition

    04 Jan 2019 | Teaching Materials | Contributor(s):

    By Naowarat (Ann) Cheeptham1, Laura B. Regassa2, Michèle I. Shuster3

    1. Thompson Rivers University 2. Georgia Southern University 3. New Mexico State University

    Bioinformatics case study focusing on phylogenetic tree interpretation, published in the National Center for Case Study Teaching in Science

    https://qubeshub.org/publications/1004/?v=1

  5. Genes and Civil Liberties

    04 Jan 2019 | Teaching Materials | Contributor(s):

    By Philip L. Bereano

    University of Washington, Seattle

    This lesson focuses on examining civil liberties issues as they relate to genetic research. Students can choose to represent an organization, real or fictional, that will report to a task force on...

    https://qubeshub.org/publications/998/?v=1

  6. For Sale: Iceland's Genetic History

    03 Jan 2019 | Teaching Materials | Contributor(s):

    By Oksana Hlodan

    Lesson on Iceland's genetic history, published in AIBS

    https://qubeshub.org/publications/995/?v=1

  7. Exploration of the Human Genome by Investigation of Personalized SNPs

    03 Jan 2019 | Teaching Materials | Contributor(s):

    By Lani C. Keller

    Quinnipiac University

    To increase students' interest in their own genomes, this computer-based laboratory lesson is designed to be coupled with the opportunity for the students to be genotyped by the consumer sequencing...

    https://qubeshub.org/publications/993/?v=1

  8. Complete Set of Lessons

    01 Nov 2018 | Teaching Materials | Contributor(s):

    By Anne Rosenwald1, Gaurav Arora2, Vinayak Mathur3

    1. Georgetown University 2. Gallaudet University 3. Cabrini University

    The Genome Solver Project began as a way to teach faculty some basic skills in bioinformatics - no coding or scripting. These Lessons also work well in the undergraduate classroom, culminating with...

    https://qubeshub.org/publications/860/?v=1

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